The Hidden US COVID-19 Pandemic
More than 140,000 US children lost a primary or secondary caregiver due to the COVID-19 pandemic.
One U.S. child loses a parent or caregiver for
every four COVID-19 deaths, a new modeling study published today in Pediatrics reveals.
The findings illustrate orphanhood as a hidden
and ongoing secondary tragedy caused by the COVID-19 pandemic and emphasizes
that identifying and caring for these children throughout their development is
a necessary and urgent part of the pandemic response – both for as long as the
pandemic continues, as well as in the post-pandemic era.
From April 1, 2020 through June 30, 2021, data suggest that more than 140,000 children under age 18 in the United States lost a parent, custodial grandparent, or grandparent caregiver who provided the child’s home and basic needs, including love, security, and daily care.
Overall, the study shows that approximately 1 out of 500 children in the United
States has experienced COVID-19-associated orphanhood or death of a grandparent
caregiver. In the 1950s, we did the right thing and eliminated polio
There were racial, ethnic, and geographic disparities in
COVID-19-associated death of caregivers: children of racial and ethnic
minorities accounted for 65% of those who lost a primary caregiver due to the
pandemic.
Children’s lives are permanently changed by the
loss of a mother, father, or grandparent who provided their homes, basic needs,
and care. Loss of a parent is among the adverse childhood experiences (ACEs)
linked to mental health problems; shorter schooling; lower self-esteem; sexual
risk behaviors; and increased risk of substance abuse, suicide, violence,
sexual abuse, and exploitation.
“Children facing orphanhood as a result of COVID is a hidden, global pandemic that has sadly not spared the United States,” said Susan Hillis, CDC researcher and lead author of the study.
“All of us –
especially our children – will feel the serious immediate and long-term impact
of this problem for generations to come. Addressing the loss that these
children have experienced – and continue to experience – must be one of our top
priorities, and it must be woven into all aspects of our emergency response,
both now and in the post-pandemic future.”
The study was a collaboration between the
Centers for Disease Control and Prevention (CDC), Imperial
College London, Harvard University, Oxford University, and the
University of Cape Town, South Africa. Published in the Oct. 7 issue of the
journal Pediatrics, it was jointly led by CDC’s COVID Response
and Imperial College London, and partly funded by the National Institute on
Drug Abuse (NIDA), part of the National Institutes of Health (NIH), as well as
Imperial College London.
“The magnitude of young people affected is a
sobering reminder of the devastating impact of the past 18 months,” said Dr
Alexandra Blenkinsop, co-lead researcher, Imperial College London. “These
findings really highlight those children who have been left most vulnerable by
the pandemic, and where additional resources should be directed.”
The analysis used mortality, fertility, and census data to estimate COVID-19-associated orphanhood (death of one or both parents) and deaths of custodial and co-residing grandparents between April 1, 2020, and June 30, 2021, for the U.S. broadly, and for every state.
“COVID-19-associated deaths” refers to the combination of deaths caused
directly by COVID-19 and those caused indirectly by associated causes, such as
lockdowns, restrictions on gatherings and movement, decreased access or quality
of health care and of treatment for chronic diseases. The data were also
separated and analyzed by race and ethnicity, including White, Black, Asian,
and American Indian/Alaska Native populations, and Hispanic and non-Hispanic
populations.
The study authors estimate that 120,630 children
in the U.S. lost a primary caregiver, (a parent or grandparent responsible for
providing housing, basic needs and care) due to COVID-19-associated death. In
addition, 22,007 children experienced the death of a secondary caregiver
(grandparents providing housing but not most basic needs). Overall, 142,637
children are estimated to have experienced the death of at least one parent, or
a custodial or other co-residing grandparent caregiver.
“The death of a parental figure is an enormous loss that can reshape a child’s life. We must work to ensure that all children have access to evidence-based prevention interventions that can help them navigate this trauma, to support their future mental health and wellbeing,” said NIDA Director Nora D. Volkow, MD.
“At the same time, we must address the
many underlying inequities and health disparities that put people of color at
greater risk of getting COVID-19 and dying from COVID-19, which puts children
of color at a greater risk of losing a parent or caregiver and related adverse
effects on their development.”
Racial and ethnic
disparities in COVID-related caregiver loss
There were significant racial and ethnic disparities in caregiver deaths due to COVID-19. White people represent 61% of the total U.S. population and people of racial and ethnic minorities represent 39% of the total population.
Yet, study results indicate that non-Hispanic
White children account for 35% of those who lost a primary caregiver (51,381
children), while children of racial and ethnic minorities account for 65% of
those who lost a primary caregiver (91,256 children).
When looking at both primary and secondary caregivers, the study found that findings varied greatly by race/ethnicity: 1 of every 168 American Indian/Alaska Native children, 1 of every 310 Black children, 1 of every 412 Hispanic children, 1 of every 612 Asian children, and 1 of every 753 White children experienced orphanhood or death of caregivers.
Compared to white children, American Indian/Alaska Native children were 4.5
times more likely to lose a parent or grandparent caregiver, Black children
were 2.4 times more likely, and Hispanic children were nearly 2 times (1.8)
more likely.
Overall, the states with large populations –
California, Texas, and New York – had the highest number of children facing
COVID-19 associated death of primary caregivers. However, when analyzed by
geography and race/ethnicity, the authors were able to map how these deaths and
disparities varied at the state level.
In southern states along the U.S.-Mexico border,
including New Mexico, Texas, and California, between 49% and 67% of children
who lost a primary caregiver were of Hispanic ethnicity. In the southeast,
across Alabama, Louisiana, and Mississippi, between 45% to 57% of children who
lost a primary caregiver were Black. And American Indian/Alaska Native children
who lost a primary caregiver were more frequently represented in South Dakota
(55%), New Mexico (39%), Montana (38%), Oklahoma (23%), and Arizona (18%).
The current study follows closely in line with a similar study published in The Lancet in July 2021, which found more than 1.5 million children around the world lost a primary or secondary caregiver during the first 14 months of the COVID-19 pandemic. In both the global and US studies, researchers used the UNICEF definition of orphanhood, as including the death of one or both parents6.
The definition includes children losing one
parent, because they have increased risks of mental health problems, abuse,
unstable housing, and household poverty. For children raised by single parents,
the COVID-19-associated death of that parent may represent loss of the person
primarily responsible for providing love, security, and daily care.
“We often think of the impact of COVID-19 in terms of the number of lives claimed by the disease, but as this study shows, it is critical to also address the broader impact – both in terms of those who have died, and those who have been left behind,” said study co-author Charles A. Nelson III, PhD. who studies the effects of adversity on brain and behavioral development at Boston Children’s Hospital.
“We must ensure children
who have lost a parent or caregiver have access to the support services they
need, and that this additional impact of the COVID-19 pandemic is
comprehensively addressed in both our rapid response and our overall public
health response.”
There are evidence-based responses that can
improve outcomes for children who experience the COVID-associated death of
their caregivers:
- Maintaining
children in their families is a priority. This means families bereaved by
the pandemic must be supported, and those needing kinship or foster care
must rapidly receive services.
- Child
resilience can be bolstered via programs and policies that promote stable,
nurturing relationships and address childhood adversity. Key strategies
include:
- Strengthening
economic supports to families.
- Quality
childcare and educational support.
- Evidence-based
programs to improve parenting skills and family relationships.
- All
strategies must be age specific for children and must be sensitive to
racial disparities and structural inequalities. They must reach the
children who need them most.
In the closing words of the paper, “Effective
action to reduce health disparities and protect children from direct and
secondary harms from COVID-19 is a public health and moral imperative.
Reference: “Covid-19-Associated Orphanhood and
Caregiver Death in the United States” by S Hillis, et al., 7 October
2021, Pediatrics.
DOI: 10.1542/peds.2021-053760